Unconditional Love – Trisomy 13

A Mother's Letter of Love to her Unborn Child

When the joy of pregnancy becomes mixed with a Trisomy 13 diagnosis for your unborn child, a mother’s love doesn’t quit.  It grows stronger each day that little one grows inside, even when she knows that his birth might also mean his end.  I was blessed to teach Hannah, her senior year in high school, and we’ve kept in touch over the years.  When I saw this letter, I knew it needed to be shared on a site dedicated to caregiving of all kinds.  May you be blessed by this mom’s beautiful love for her baby:

One Mommy’s letter of love to her unborn baby with Trisomy 13

Dear Jedediah,

I love you. I am so thankful you are mine.

The doctors say you have a severe chromosome abnormality called Trisomy 13. They say you aren’t going to live.

But you are living now.

And every moment with you is precious.

So kick me, punch me, roll, and turn. Remind me that you are alive right now. Remind me how lucky I am to be your mommy.

You are so precious. You are so loved.

Your name, Jedediah, means “Beloved of the Lord.” Every time I hear your name I will be reminded that God loves you even more than I ever could. It is comforting to think of how much God loves you.

There are so many people who love you too, Jedediah. Daddy and I love you. Your family and friends love you. You have many friends who are praying for you and hope to meet you someday. I hope that somehow, in some way, you can know that we love you.

I can’t wait to hold you in my arms, yet at the same time I dread that day approaching because I know what it will likely mean.

So take your time dear one. If you are comfortable in mommy’s tummy, stay for a while. And kick me, punch me, roll, and turn.

And let me love you.

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  • This is amazing, and such an affirmation of life. Thanks for sharing it!

    • You’re welcome Michele – it touched me deeply and I am pleased to share!

  • Andrew Budek-Schmeisser
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  • This is so heartbreaking, yet such an example of unconditional sacrificial love.

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  • Such a mature decision to choose love even though heartbreak could follow it. I’ve been there, too. 🙁 Praying for Hannah.

  • What a precious letter. Thanks for sharing it with us. It reminds me of the biblical Hannah, who prayed for a child, yet was willing to give him back to the Lord.

    • What a beautiful thought – thank you for sharing that!

  • What a beautiful letter to an unborn child. Every moment of life is so very precious. May the Comforter be close to Hannah and her family during this time.

    • Thank you Anita – I know she’s counting on just that!

  • Carol, Congratulations on your pregnancy and very special child. I am also the mother of a trisomy 13 child. I was blessed to not know the diagnosis before birth. So at birth my child was taken to the NICU where she received the much needed 2 days of oxygen. She stayed in the NICU for 11 days as we had her fully assessed. Like every women who is told her child has trisomy 13 syndrome we were given little hope. My attitude was such that my child was living she was not dead, so we would treat her as I would my other kids if stricken with cancer or in a serious car accident, I was not going to just hold her and watch her die. There is much support for only comfort care but there is also support for LIFE care. This is what I and many other parents can offer you in the Living with Trisomy 13 community. My own child will be 17 years next month. She is living with full – complete trisomy 13. The reality is these kids in many cases, with the good medical intervention we have now in 2017, can live and thrive. They are loving members of their families. If you’d like to see what is possible with trisomy 13 life please join our public group for trisomy 13 awareness. https://www.facebook.com/groups/Trisomy13 I also suggest you also join the SOFT private to members group. https://www.facebook.com/groups/TrisomySOFT
    There is great hope for LIFE and time with your precious child with love and good medical care.

  • This is beautiful. I was amazed to find this, I have been looking for people that have followed through with their pregnancies with trisomy 13 as I did. Your post is an affirmation of what I believe in and stuck to. #elijahiswaiting