Drowning in Plain Sight Part III: Angels & Lifeguards

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Lifeguard: Angels in human skin who recognize signs of struggle in another person.

Lifeguard: Angels in human skin who recognize signs of struggle in another person.

In this third part of our series on Drowning in Plain Sight, we salute those ‘lifeguards’ and ‘guardian angels’ who recognize a caregiver’s silent struggle in the waters of caregiving despair.

“Drowning people cannot wave for help. Nature instinctively forces them to extend their arms laterally and press down on the water’s surface. Pressing down on the surface of the water permits drowning people to leverage their bodies so they can lift their mouths out of the water to breathe.” On Scene, The Journal of U.S. Coast Guard Search and Rescue

The engine shuddered to stop and I hunched for a moment over the steering wheel. I could see the family room light while the rest of the house was dark. That meant that Randy had been detained again, and the girls were home alone. I closed my eyes with relief that we live in such a safe place, with staff for neighbors and Randy’s office window shining its light across the parking lot. Fifteen hours ago Andrew and I had left home in the pre-dawn hours. Since then, Andrew had suffered through anesthesia, spinal tapping, recovery, chemo, and blood draws before the long drive home. The darkness magnified our exhaustion and reminded us that suppertime had come and gone.

I reached back and laid a hand on Andrew’s bony little knee and shook gently. “Wake up, little man, we’re home.” Oh, that didn’t sound very cheerful. It just sounded tired. I scraped energy from the bottom of my soul, shifted in my seat and tried again, “Let’s go in the house, Drew, we gotta get supper!”

“Not hungwy,” he grumped from the car seat.

“I know,” I sighed. Who would be hungry after all the things that had filled his body today?

I slumped up the sidewalk, towing the chemo laden little boy after me. Supper was the last thing I wanted to tackle, but I straightened my shoulders and mentally gave myself a shake. From somewhere I needed to dredge the energy to ask the girls about their day, to fix something nutritious, to read to them and tuck them into bed.

I twisted the handle and the door swung open. As I opened my mouth to call out to the girls, a wonderful aroma swept across my consciousness. Food! Someone had brought a casserole! Bless that someone!

“Hello Larissa! Hey Karina! We’re home!” I yelled.

Two sets of footsteps pounded around the corner and two happy girls bounced into us where we stood rooted in the entryway. “Mommy, Grammy brought us food! Everything! You can’t believe it!” shouted Karina while she hugged me hard.

“She said you didn’t need to think at all, just eat,” added Larissa, her arms wrapped around my neck.

I smiled with guilty remembrance. Last week, after the same kind of chemo day, Grammy had been at our house when we got home. She’d brought a casserole from a church friend and I was ever so grateful. But within a few moments, her gentle hands had pried mine from the refrigerator handle, where they had frozen in indecision. “Carol, you’ve been staring in the fridge for awhile now, what are you looking for? Can I get something for you?”

At that I had burst into tears, “I don’t know what I’m looking for, I don’t know what goes with this casserole, I don’t know what kind of vegetable to make, I don’t know what kind of anything to get. I just don’t know….”

Grammy had smiled, led me to the kitchen stool, left me there and gotten out salad dressing and salad fixings. Now why couldn’t I have thought of that?

I had explained to her the phenomenon of chemo brain, how it can affect your ability to think at the oddest moments, and how while I never received any chemo whatsoever, I still got a hefty case of chemo brain after long days of chemotherapy. She had just laughed her typical hearty laugh, hugged me, and finished fixing supper for my family.

Today, someone hadn’t just brought a casserole. Reverently I picked up a paper plate while I surveyed my kitchen counter. A complete meal, along with anything and everything needed to eat it marched down the counter. Drink, along with plastic cups, casserole, veggies, salad, rolls with bread and jam. I recognized some of the things from my refrigerator; others I had never seen before. But I didn’t have to make any decisions or fix a single item. I wouldn’t even have to wash dishes when dinner was over, as the spread included plastic ware, napkins—everything! My only decision was how much to put on my plate.

“Mommy, why are you standing there holding that plate like it’s gold?” asked Karina.

I laughed aloud, “Because it is!” I replied as I began to dish up platefuls of food for the family. “Because it is pure gold!”

Pure gold—that’s Grammy. Grammy and Papa had been waiting for me on my front sidewalk on the day of Andrew’s diagnosis, along with a group of friends. Waiting so I wouldn’t be alone. Waiting to help in whatever capacity I needed. They had helped pack up the girls, and me, and held me while I cried.

Grammy had already washed my laundry more than once, she’d done mending for us, she’d cleaned my bathroom, and she’d watched my girls when I couldn’t be there. She and Papa had shampooed our carpet when we’d had to sterilize everything in order to bring Andrew home. Every day, as I walked into work, I received Grammy’s huge bright and happy smile, and a hug. When I couldn’t be at work, she would call to see what had gone wrong, and to find out what she needed to do to help out our family. Grammy and Papa kept track of our chemo days, long after others had forgotten, and made sure to call with prayer support when they knew it was going to be a long one.

Grammy and Papa are just amazing people, their help incredible, and their support inexhaustible. These two extraordinary people started out with regular names like Darlene and John, but throughout Andrew’s illness they grew into “Grammy and Papa,” the names their ‘real’ grandchildren call them, and the role they play in our lives. But secretly, I think, their real names are “angels.”

If you missed the first two stories in this series, you can find them here and here.

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Drowning in Plain Sight-Part II Breathing Lessons

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Which girl looks the closest to drowning?

Which girl looks the closest to drowning?

Drowning victims and caregivers share more than one might think. In this five-part series we explore the phenomena of “Drowning in Plain Sight.” As you read, whether you’re a caregiver or someone who loves a caregiver, think about the people in your ‘pool’–is anyone drowning?

“Drowning people’s mouths alternately sink below and reappear above the surface of the water. The mouths of drowning people are not above the surface of the water long enough for them to exhale, inhale, and call out for help. When the drowning people’s mouths are above the surface, they exhale and inhale quickly as their mouths start to sink below the surface of the water.” Characteristics of the Instinctive Drowning Response–On Scene, The Journal of U.S. Coast Guard Search and Rescue

Somewhere, between diagnosis and deliverance, I forgot how to breathe. I find myself, at odd moments, holding my breath, not in anticipation or fright, but simply because I have forgotten the rhythm of breathing.

I didn’t even know about my loss until I started experiencing horrible, unexplainable pain in the middle of my chest that isn’t a heart problem (checked that), isn’t a nerve problem (checked that too), or even a lung problem (checked the bellows out and they’re fine).

“You’re as healthy as a person half your age,” the cardiologist told me. If that’s true, why does it hurt to breathe or have my heart beat strong and deep?  Why does my left side swell up?  Why does it hurt to lie down, or stand up?  Why does it happen over and over again?

“Your breathing function is normal,” the internist told me. “In fact, your lung capacity is superior.”  Than why does it hurt to breathe?  Why can’t I take a deep breath without agony?  Walking up stairs is a cruel form of torture.

“Have you ever considered acupuncture?” my family practitioner asked me. Really?  Alternative therapy?  I couldn’t believe a physician was suggestion alternative therapy.

“Well, I do go to a chiropractor and a massage therapist,” I admitted.

“Does it help?” she asked.

“I’m not sure.”  I shrugged. “Sometimes it helps the pain go away if I go in early, sometimes it doesn’t. My massage therapist claims that I have incredibly tight muscles on my left side. It takes her an hour to work through the knots.”

“Do you know how to breathe?” my neighbor and friend asked me. She’s a life coach, and helps people with chronic pain—she’s also a person in chronic pain. “I can teach you how to breathe.”  I reluctantly agreed to go over to her house after work one evening (after my second job–I much rather would have been in bed).

“It’s called diaphragmatic breathing,” she told me. “Put your hand right below your rib cage and try to push your hand out when you breathe.”  I felt silly, but I tried it. “When you breathe shallowly, you decrease your body’s ability handle pain.”

“Really?”

“Yes.”  She launched into the technical reasons why shallow breathing keeps a person from processing pain and releasing endorphins that help the body take care of pain. I thanked her and wandered out of her house, hand on stomach, practicing my breathing while thinking of breathing in general.

Over the next few weeks, while I waited for my pain to go away, I caught myself not breathing. The computer didn’t load fast enough—I clenched my teeth and my breathing ceased its regular, steady rhythm. Three family members with perfectly good hands and arms and backs failed to put their own dishes in the dishwasher—how hard can it be to bend slightly and put a dish in the dishwasher?  I got cut off on the highway—have they stopped giving driving tests?!  Ooops!  My teeth were clenched and I had been holding my breath for who-knows-how-long.

Somewhere, between diagnosis and deliverance, I had started holding my breath—in fright, in anticipation of the next piece of bad news, in mental pain and agony, in emotional stress. No one ever warned me that a side effect of all that stress would be a loss of breathing. In fact, no one warned me about any of the side effects of a cancer diagnosis. Slowly, every so slowly, I’m putting a name on them and dealing with them. For now, I’ll start with breathing lessons.

Click here if you missed the first installment of Drowning in Plain Sight.

Many thanks to my incredible next-door-neighbor, Becky Curtis.  If you suffer from chronic pain, find hope on her website Take Courage Coaching.

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Drowning in Plain Sight-Part I

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The beautiful water belies the silent drama...

The beautiful water belies the silent drama…

Drowning victims and caregivers share more than one might think. In this five-part series we explore the phenomena of “Drowning in Plain Sight.” As you read, whether you’re a caregiver or someone who loves a caregiver, think about the people in your ‘pool’–is anyone drowning?

“Except in rare circumstances, drowning people are physiologically unable to call out for help. The respiratory system was designed for breathing. Speech is the secondary or overlaid function. Breathing must be fulfilled before speech occurs.” Characteristics of the Instinctive Drowning Response–On Scene, The Journal of U.S. Coast Guard Search and Rescue

The doctor adjusted his stethoscope on my back and told me to take a deep breath. I breathed in, and sat, not paying much attention to what was happening. The stethoscope didn’t move. “Again,” he ordered softly.

I let out the air I’d been holding and took another breath while my mind skipped to what I needed to grab from the store before I headed home from this appointment.
The stethoscope still had not journeyed to a new spot.

“Carol,” he reprimanded, “take a de-e-e-p breath!”

I reached deep and breathed properly. This I could do. My life might be falling apart and things running out of control, but I could breathe deep. I’m a flute player. My flute teacher used to make me practice breathing and taught me how to breathe deeply from the abdomen. I drew a deep breath and found that my air seemed to have nowhere to go. I pretended to myself that all was normal and waited for the stethoscope to go to the next spot.

The stethoscope dropped while the doctor felt along my back.

What was the deal? He’d only listened to my breaths at the top of my back, that wasn’t normal, was it? Oh really. Who cares? I wonder if I mixed Andrew’s nasty medicine with chocolate pudding, would that help him get it down? Swallowing posed the problems…pudding is soft, maybe he could get it down that way. Oh, and besides the pudding, I should get some shaving cream. Karina needed to study her spelling words and writing in shaving cream is a fun way. Yeah, and my grades are due next week, so while she’s practicing spelling, I should get those tests graded. Man, I wish this headache would go away.

“Have you ever had asthma?” the question came out of nowhere.

“Asthma?” Was he kidding? “No, I’ve never had asthma. My breathing is fine—I’ve never had any problem.”

Silence.

“Why, is there a problem?” I finally thought to ask.

“Well, Carol. If you don’t have asthma…then…you’re not breathing.”

I laughed out loud. “I assure you I’m breathing. I’m alive.”

He smiled kindly and explained to me that the muscles in my back felt like the slightly atrophied muscles of an asthmatic patient; showing signs of not breathing deeply enough. I sighed and the very act of doing so proved to me that this doctor was way off.
Not breathing – who ever heard of that. Of COURSE I was breathing. One has to breathe to live.

He explained more fully that while he was listening, I took a decent breath, but then half the time forgot to let it back out. I needed to practice breathing by taking in big breaths, holding it to the count of three and blowing it, hard, all the way out. Then push even more out if I could. I was holding too much in.

Brother! I’m holding too much in, all right, but it’s not air. It’s panic, it’s fear, it’s responsibilities, it’s life. But breaths? I was doing fine!

I left the doctor’s office slightly miffed that I hadn’t gone in for breathing issues at all, yet he’d spent valuable time obsessing about my breathing.  Frankly, the doctor had scared me a little bit with his pronouncement about my back. This was the same doctor who kept telling me I needed to get some help; to stop carrying things on my own and to allow people to give me some relief. The same doctor who had, just the week before, reminded me that in order to keep caring for my leukemic boy I would need to eat a little better, drink more water and maybe begin exercising.

Again I snorted with disgust. Like I have time to exercise and eat better…I’d like to see him get up at 3 to get to chemo and return home after dark and still get Larissa to her club meeting and read with Karina and get papers graded. Drink more water? That’d be great, but who has time to count drinks and really, I’d just have to use the bathroom more often. But yeah…we all know those health rules and just as soon as I could, I would follow them like I used to do.

All the way along the one-hour highway route my mind berated that silly doctor who could never just treat what I was asking for, but continually reminded me of taking care of not just my sick boy, but me. My thoughts bounced around wildly like they had come into the habit of doing, and I drove steadily onward. Suddenly breath gusted out of my mouth as dizziness hit.

Whoa. That was weird. I think maybe I was holding my breath while I was thinking! No, one doesn’t just hold a breath – no one thinks about breathing, they just do it and it works! It’s natural! I continued homeward, thoughts flying in a different direction. Out of nowhere another breath blew out. Oh my goodness, my shoulders are up and I had been holding my breath!

Catching myself holding my breath three more times on the way home convinced me that, indeed, my life had become so crazy that I was now holding my breath, along with my shoulders and my fears, in an effort to accomplish more than I could handle.
I had quit reaching out to friends, feeling that I didn’t have time.
I had quit all the things I most enjoyed doing in an effort to help my kids be “normal”.
I had quit walking in the morning, using that time to get a head start to my day.
I was no longer doing all the things to take care of myself, in order to care for my family.
And I was no longer breathing. 

Have you ever found yourself ‘not breathing’ and unable to communicate with others about your inability to breathe?

The series continues with Breathing Lessons.

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Show Up!

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Carol and Larissa

Carol and Larissa

I just finished giving the Baccalaureate address for my daughter’s graduation.
Why am I writing that on a caregiver blog?

Because person after person thanked me for being real—for sharing my story, for offering hope and a simple truth. I shared pieces of my life, and pieces of my son’s illness, because I believe that God gives us moments to use what we’ve gone through to bless others.

I preached about something simple.

Show up.

I talked about showing up to school, relationships, work and ultimately, to God. Because anything else? God does for us.

On the long drive home, my mind transferred the sermon from graduates to caregivers.
When we start caregiving, we don’t have a clue what we are doing. Often we don’t have a clue what the diagnosis means or what the next few days, months, or even years hold for us. We bumble along, trying desperately to understand doctor orders, patient needs and the confusion that fills our lives.

But we try. We have to, right? We don’t really even feel that we have a choice sometimes. So we show up. We do our best and pray that we’re not screwing up any medical possibility of recovery for this person we love so dearly.

We go with our patient to their doctor appointments. We show up with healthier food (or at least try). We dive into the confusing world of research and best practices, hoping to learn all we can to help kick that cancer. We read and study. We share and struggle.

We show up.
Day after day, night after night, appointment after appointment. We wonder if we’re doing the right things. We realize we’re not trained for this job that’s been thrust at us. We’re afraid that someone will notice our incompetence. But when no one appears to volunteer, we take on any task that needs doing. We show up.

And it’s a God thing. Because He does the rest.
We do the best we can, but we are not the Savior.
We administer all the medications we’re told to administer, but we are not the Great Physician.
We soothe and rub, take temperatures and sing to sleep, but we are not the Healer.
We sit by the bedside, watching heart monitors and medicine drips, but we are not the Author of Life.

We do what’s asked of us; we show up. But it is God who holds our patient’s future in His hands. And because of that, we can graduate from worry, doubt, and fear. We can celebrate and let God do what He does best—care for us!

Photo credit: ©2013 Hayden Cox

Photo credit: ©2013 Hayden Cox

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Cancer Caregiving 101: Why Plan?

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I snapped this photo the day before our almost loss.

I snapped this photo the day before our almost loss.

Behind the Scenes: (Almost) Losing Sarah
We looked like something out of a freak show. A plump, flustered lady lugging a lawn chair, blankets, a pillow and a bag standing next to a tall, bald man who looked liked he’d escaped from the set of Schindler’s List. Two excited, fluttering children jabbering about swimming in the ocean while gripping beach towels and waiting impatiently for the Muni to show up.

The brisk San Francisco winds wafted the words of our strange group around. I looked up, glad for the sunny October skies and the ability to fulfill our daughters’ desire to swim in the ocean (we lived in Montana—one swims in the ocean when one has the chance, not just if the water is warm). Everything and anything we could do to make the few days we got to spend together normal was worth every grey hair and frazzled nerve.

“I’ll help Daddy up the steps!” declared Laura, our oldest daughter, as she moved into place at his side.

“Thank you. Need help.” Pedro’s words required effort because his facial muscles remained frozen.

“I have the towels!” Sarah excitedly grabbed Laura’s towel and stood in the front of our group. I shifted my load and worried about whether or not Laura’s nine-year-old muscles would provide enough help for Pedro to negotiate the two steep steps onto the approaching train.

The Muni slid to a stop in front of us. Sarah danced around behind the people in line ahead of us, waiting for the disembarking passengers. I decided at the last minute that I could carry everything in one hand and assist Pedro with the other. While shifting my load to one hand, I heard the doors start to slide closed I looked up in shock. Pedro and Laura were inches away from the entrance. Sarah was inside the Muni. Her face frozen in horror as the door whissst closed with a solid thud.

The world around me entered slow motion. I heard the lawn chair clatter to the sidewalk as I lunged for the door and pounded on it with both fists. Laura screamed. Pedro sounded like he was underwater. The train gave a jerk. Some smart person inside the train hit the emergency button. The train jerked again. The doors slid open. Eager hands reached out to help us gather our belongings and lumber onto the train. The doors slid shut.

Caught without a plan. In retrospect, I probably could have sprinted alongside the train to the next stop—it wasn’t that far away, and the Muni doesn’t move that fast. But Sarah was only eight. We had no plan. We had been caught off guard in a big city with no proper plan for what to do if we should get separated. The girls didn’t have cell phones, and I wasn’t even sure if they knew our phone numbers.

As we neared the end of the line and the Pacific Ocean, my mind kept repeating the scene. The whissst of the doors. The look of horror on Sarah’s face. The feeling of drowning. I didn’t even notice that the man in the corner was rocking back and forth talking about the voices (on our return trip, we saw him handcuffed outside a store), or the old man carrying a parrot on his shoulder. All I could think about was our loss—our almost loss.

How unprepared we remained for emergencies and separation.

We lugged everything off the train and the girls ran into the bathroom to change. We made our way across the street to the sand dunes. Laura and Sarah flew ahead, oblivious to the cold, the wind and the near loss. I dragged the lawn chair, the blanket, the pillow and my bag to a sheltered spot with a view of the surf and helped Pedro settle himself.
The girls lunged into the ocean, splashing and squealing in delight.

“That was scary.” Pedro said.

I nodded, unable to speak about it yet. Finally, I ventured, “Maybe we should have a plan about what to do in case of emergencies.”

“Good idea.”

Silence cloaked us.

“I’m cold. Can we go?”

I nodded and called to the girls, “Five minute warning! Daddy’s freezing and we need to get him warm!”

They grumbled good-naturedly, but their blue lips belied their words of wanting to stay in the ocean longer.

I looked at my watch. Fifteen minutes. We’d almost lost Sarah for fifteen minutes at the beach. I shrugged. It didn’t matter. Fifteen minutes or five hours. When life holds only uncertainty, every minute counts.

Plans. You should have one. If everyone in your family enjoys good health, now is a great time to talk about plans. Plans for emergencies, plans for disasters, plans for ICU and catastrophic events. Not talking about those things won’t prevent them from happening. Make plans before you almost lose someone. Trust me. It’s better that way.

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Today I’m joining Crystal Stine and her “Behind the Scenes” link up. Click on the icon if you’d like to know more about joining the fun.

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It’s All About the Light

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A cute Anna's Hummingbird sticks out its tongue.

A cute Anna’s Hummingbird sticks out its tongue.

I love hummingbirds—these small, speedy, colorful and difficult to photograph birds measure from 2.75 inches to 5.5 inches in length. These measuring-spoon sized avian acrobats act like California Condors when defending their territory from foreign invasion (i.e., other birds approaching ‘its’ feeder).

I feel tired just watching a hummingbird—their hearts can beat up to 1260 times per minutes (a cardiologist’s nightmare). They excel in foreign acquisitions (they build expandable nests out of insect and spider silk) they can consume up to 1.7 times their weight in nectar each day (and at night, they lower their metabolism and body temperature so they don’t have to eat).

What I love the most about these feisty birds has more to do with light than with the birds themselves. A hummingbird perched on a branch reminds me of a little old tired person. They glance every which way, and their posture seems hunched and protective. But, ah. The light. When the light shines at just the right angle, the male hummingbirds transform instantly into iridescent marvels. What appeared cute, but plain a split second before turns into something of indescribable beauty.

The same hummingbird s second later as he turns towards the light.

The same hummingbird s second later as he turns towards the light.

And so we humans transform when we encounter the Light. Without the Light, we remain mundane, ordinary and curmudgeonly—defending our territory, our rights and ourselves. When we bask in his Light, we allow ourselves to reflect his glory and others have an opportunity to see the blindingly beautiful person God intended us to be.

What an iridescent glow when he's fully turned toward the light source!

What an iridescent glow when he’s fully turned toward the light source!

“No one lights a lamp, then hides it in a drawer. It’s put on a lamp stand so those entering the room have light to see where they’re going. Your eye is a lamp, lighting up your whole body. If you live wide-eyed in wonder and belief, your body fills up with light. If you live squinty-eyed in greed and distrust, your body is a dank cellar. Keep your ryes open, your lamp burning, so you don’t get musty and murky. Keep your life as well lighted as your best-lighted room.” (Luke 11:33-36—The Message)

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Cancer Caregiving 101: Join the Club!

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No one WANTS to join, but once you're inducted, you might as well take part!

No one WANTS to join, but once you’re inducted, you might as well take part!

It’s not an elite club.
It’s not a desirable club.
It comes with a very high membership fee.
No one ever requests to join.
But once you’ve been inducted into the club of Cancer Caregivers, you might as well participate fully. No matter how busy you are at your full-time job of caregiving, plus your regular employment, plus your responsibilities as parent, spouse, etc, outside of the caregiving role, our advice to you is Join the Club!

 

Make it a priority to participate. Children’s hospital facilities often organize parent suppers or get-togethers to form a sort of parent-support group. Sometimes I felt that I did not have time to go, but when I went it was so nice to be with a group of people that were sharing my journey…who knew what questions NOT to ask, who knew what subjects were OK (it’s only in this group that it’s OK to talk about bodily fluids), and who might have more experience than you do at what you’re doing.

Take advantage of offers. Sometimes, charitable groups offer benefits to cancer patients and their families. Candle-lighters, a helper group for families of children with cancer, offered our family the chance to take a jet-boat river cruise for a day outing with other children-with-cancer families. They had offered other things over the years of fighting cancer, but often we could not participate because of travel distances or work commitments. This day on the river was a joy – and it was so touching to watch other cancer-kids in different phases of treatment, living their lives as “normal as possible” under the circumstances…choosing to live with joy for a day. It was good for my boy to recognize that other kids were in different stages, some bald, some healed, some still struggling—he felt like he was in a group where he belonged!

Be brave and share. I remember standing outside the entryway to the children’s cancer ward, staring out the window, feeling very alone and overwhelmed. A lady stood down a ways and after awhile I noticed she had the same blank stare out at the beautiful scenery that I had. I felt a little shy, but she looked like she was hurting. I tried the line, “You come here often?” She smiled and told me of her son, back for his umpteenth hospital visit in a long fight with brain tumors. I told her of my son’s fourth hospital visit in a new fight against leukemia. We didn’t really offer any advice, we didn’t hug or make a lifetime friendship, but for just a moment, our burden was lightened because we were not walking alone.
What ‘club benefits’ have you taken advantage of?

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Cancer Caregiving 101: Chemo Brain by Proxy

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Chemo Brain by Proxy--a mysterious state of mind that caregivers may suffer from.

As caregivers or someone who loves a cancer patient, we’ve all heard about chemo brain–that mysterious Swiss-cheese effect that happens to a cancer patient’s brain while under the influence of powerful chemo drugs. Well, have you ever heard of Chemo Brain by Proxy?.

I stood in the middle of the kitchen, a measuring cup in one hand and a carton of eggs in the other.  What was I doing?

Oh, yeah.  Cleaning the bathroom.

I looked at the items in my hands and shrugged before setting them down on the open oven door.  Silly me.  I had come into the kitchen for a rag!  I grabbed a rag and some cleaner from under the sink and laughed—must be Chemo Brain by Proxy again.

Funny, how I’d never had a chemotherapy treatment in my life, but somehow, I’d seemed to acquire the same forgetfulness that robbed Pedro of his intent and memory during his treatment.  Of course, he seemed to be over his chemo brain already….

            “Anita!” someone called from across the church lobby.  I turned with dread.  I recognized the voice, but I couldn’t think of a name to go with it.  Maybe seeing her face would help….nope. “I was wondering if you got my message?”

“Uh, no.”  For the life of me, I couldn’t remember getting a message from any one.

“I called your work phone,” the mystery woman replied, “and left a message in your voice mail.”

“Oh, that explains it!”  I laughed nervously.  “The school put in a new phone system, and I don’t know my password yet.  How can I help you?”

“I wondered if I could set up a conference with you about Joel.  He seems to be struggling in English.”

Joel.  He wasn’t the only one struggling.  At least I know who was talking to me now!  “How does Monday afternoon sound, Mrs. Grant?”  Whew!  I’d remembered her name!  I set the appointment for just a few minutes after my last class ended.  I wouldn’t miss or forget the appointment…hopefully.

My phone vibrated in my pocket, and I fumbled to pull it out—it was Pedro.  I wonder what he wanted?

“Are you on your way?”

I hated questions like this…where was I supposed to be and why should I be on my way there?  “Um, no.  I’m still at school.”  Maybe I could figure it out without admitting my ignorance.

“Seriously?! You’re still there?”

“Yeah.”  I wondered if my voice sounded as defeated as I felt. Chemo Brain by Proxy strikes again.

“Just kidding.” Pedro’s voice sounded far away.  “I just missed you and wondered when you’d be home from work today.”

I felt a hard ball of rage burning deep within me.  Didn’t he know how hard it was for me to keep things straight?!  How could he tease me like this?  I took a deep breath and managed a hoarse, “Ha, ha, ha!” into the phone before  I said my goodbye and ended the call.

It seemed as if the effects of chemo were wearing off Pedro and wearing on to me.   And that ball of rage?  Where did that come from?  How long had it simmered and grown until it lurked at the surface, ready to spew out of me over a simple joke?

They say remission cures chemo brain.  What cures Chemo Brain by Proxy?

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Nuts About Granola

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The first granola recipe I tried had TWO cups of oil for 12 cups of oats. Ten years ago, I thought nothing of it.

The first granola recipe I tried had TWO cups of oil for 12 cups of oats. Ten years ago, I thought nothing of it.

I’m nuts about granola, and I always assumed that it was good for me—until a friend shared her granola recipe with me and I realized how much oil and sugar hid under the guise of ‘healthy.’ I started playing around with granola recipes, and came up with this healthier version.Preheat oven to 300˚

Place the following ingredients in a blender jar:

1 13.5 oz. can of coconut milk
1 can of apple juice concentrate thawed
3 Tablespoons cinnamon
1 tablespoons salt
1 Tablespoons of vanilla
¼ cup oil
Blend for about 30 seconds.

In a VERY large bowl, mix together:
1 cup sesame seeds
1 cup flax meal
12 cups of whole rolled oats
2 1/2 cups of brown sugar

Pour the wet ingredients over the dry ingredients and mix well. Spread a portion of the granola about an inch think on a large cookie sheet or jelly-roll pan (it’s nice to have a pan with high sides) and place in oven for about an hour and thirty minutes—stir the granola every 20 minutes.   After the first hour of baking, add:

2 cups pecan pieces
1 cup almond slivers

If you bake two pans at a time, make sure you exchange the pan on the top rack with the pan on the bottom rack each time you stir the granola.

Allow the granola to cool thoroughly before placing the granola in an airtight container. If you like, once the granola has cooled, add chopped craisins or raisins.

If you’d like to know why I eat the way I do, read my Healthy (er) Choices Manifesto.

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Monster Cookies-Tasty, Vegan and Gluten-free

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These cookies make a wonderful protein-filled snack or a perfect way to end a meal.

These cookies make a wonderful protein-filled snack or a perfect way to end a meal.

Preheat oven to 380˚
Yields 24 monster-sized cookies

These monster cookies have a dash of cinnamon and they’re so good no one will know they’re vegan or mind that they’re gluten-free!

3/4 cup boiling water
1 cup flax meal (I find it’s less expensive to buy whole flax seeds and then put them in the blender to make my own flax meal)

In a small bowl, pour the boiling water over the flax meal and stir it. Set aside and measure out and beat together the following ingredients in a large bowl:

1 1/2 cups natural peanut butter (try to avoid peanut butters with added sugar or hydrogenated fats)
1/2 cup coconut butter
2 1/2 cups brown sugar
1 Tbs. baking soda
1 Tbs. cinnamon
1 tsp. salt
Add the flax/water mixture to the mixing bowl and beat for an additional minute, then add:
6 cups of rolled oats (either quick oats or whole oats)
1/2 cup applesauce
2 cups of your favorite chocolate chips

Mix well. If you’re using whole oats, you may want to let the cookie dough sit for twenty minutes or so to absorb the moisture. Use a half–cup ice-cream scoop or a half-cup measuring cup to measure out the monster cookies on a baking parchment (or Silpat) or lightly oiled cookie sheet. Bake at 380˚ for 12-15 minutes. Carefully remove the cookies from the baking sheet onto a cooling rack. As the cookies cool, they will stick together better.

If you’d like to know why I eat the way I do, read my Healthy (er) Choices Manifesto.

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